A systematic literature review of individuals’ perspectives on privacy and genetic information in the United States EW Clayton, CM Halverson, NA Sathe, BA Malin PloS one 13 (10), e0204417, 2018 | 126 | 2018 |
Patients' views on incidental findings from clinical exome sequencing KE Clift, CME Halverson, AS Fiksdal, A Kumbamu, RR Sharp, ... Applied & Translational Genomics 4, 38-43, 2015 | 106 | 2015 |
Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago AA Lemke, C Halverson, LF Ross American journal of medical genetics Part A 158 (5), 1029-1037, 2012 | 94 | 2012 |
Patients’ views on variants of uncertain significance across indications K Clift, S Macklin, C Halverson, JB McCormick, AM Abu Dabrh, S Hines Journal of community genetics 11, 139-145, 2020 | 59 | 2020 |
Incidental findings of therapeutic misconception in biobank-based research CME Halverson, LF Ross Genetics in medicine 14 (6), 611-615, 2012 | 51 | 2012 |
Engaging African-Americans about biobanks and the return of research results CME Halverson, LF Ross Journal of community genetics 3, 275-283, 2012 | 50 | 2012 |
Attitudes of African-American parents about biobank participation and return of results for themselves and their children CME Halverson, LF Ross Journal of medical ethics 38 (9), 561-566, 2012 | 48 | 2012 |
Was it worth it? Patients’ perspectives on the perceived value of genomic-based individualized medicine CME Halverson, KE Clift, JB McCormick Journal of Community Genetics 7, 145-152, 2016 | 47 | 2016 |
Patients with Ehlers–Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey CME Halverson, EW Clayton, A Garcia Sierra, C Francomano American Journal of Medical Genetics Part C: Seminars in Medical Genetics …, 2021 | 33 | 2021 |
Rare disease, advocacy and justice: Intersecting disparities in research and clinical care MC Halley, CME Halverson, HK Tabor, AJ Goldenberg The American Journal of Bioethics 23 (7), 17-26, 2023 | 20 | 2023 |
Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network JA Lynch, RR Sharp, SA Aufox, ST Bland, C Blout, DJ Bowen, ... Journal of personalized medicine 10 (2), 38, 2020 | 16 | 2020 |
Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes CME Halverson, HL Penwell, CA Francomano SSM-Qualitative Research in Health 3, 100237, 2023 | 15 | 2023 |
Patient perspectives on variant reclassification after cancer susceptibility testing CME Halverson, LM Connors, BC Wessinger, EW Clayton, GL Wiesner Molecular genetics & genomic medicine 8 (7), e1275, 2020 | 15 | 2020 |
Living kidney donors who develop kidney failure: excerpts of their thoughts CME Halverson, JY Wang, M Poulson, J Karlin, M Crowley-Matoka, ... American journal of nephrology 43 (6), 389-396, 2016 | 14 | 2016 |
Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience CME Halverson, HT Bland, KA Leppig, M Marasa, M Myers, HM Rasouly, ... Genetics in Medicine 22 (10), 1667-1672, 2020 | 13 | 2020 |
What results should be returned from opportunistic screening in translational research? CME Halverson, SH Jones, L Novak, C Simpson, DRV Edwards, SK Zhao, ... Journal of personalized medicine 10 (1), 13, 2020 | 13 | 2020 |
Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again CME Halverson, BC Wessinger, EW Clayton, GL Wiesner Journal of genetic counseling 29 (1), 18-24, 2020 | 13 | 2020 |
Standards and legacies: Pragmatic constraints on a uniform gene nomenclature CME Halverson Social Studies of Science 49 (3), 432-455, 2019 | 8 | 2019 |
Unspoken ambivalence in kinship obligation in living donation CME Halverson, M Crowley-Matoka, LF Ross Progress in Transplantation 28 (3), 250-255, 2018 | 8 | 2018 |
Comorbidity, misdiagnoses, and the diagnostic odyssey in patients with hypermobile Ehlers-Danlos Syndrome CME Halverson, S Cao, SM Perkins, CA Francomano Genetics in Medicine Open 1 (1), 100812, 2023 | 7 | 2023 |